Cure Scleroderma
Anja is the driving force behind Cure Scleroderma:
To raise awareness of the disease, we take actions such as:
Walk For Scleroderma.
Scleroderma is translated as Scleroderma, which is an extremely rare incurable autoimmune disease that affects 3,000 people in Belgium.
By organizing an annual Walk and selling t-shirts, caps and other gadgets, we hope to raise awareness of this disease and increase resources for research.
University Hospital Leuven
All proceeds from the annual walk and from sales go entirely to the Scleroderma research project, headed by Prof. Dr. Ellen De Langhe.
The Idea
In 2017 I was diagnosed with Systemic Sclerosis.
Because of red spots on my face, which I wanted to have lasered away by a dermatologist, I was advised to have blood drawn and to go to a rheumatologist....no sooner said than done.
I also had swollen, red, blue and white fingers for quite some time, read years, I blamed it on the chemotherapy I had to undergo in 2007 to cure my breast cancer.
But no, I have Raynaud's Syndrome, an early symptom of Scleroderma and other associated complaints.
After all kinds of other examinations, the diagnosis was made by Rheumatologist Dr. Jan Lenaerts.
Boom! Fries!
And now?
Don't give up, I told myself!
I am still doing relatively well and I like walking, so I decided to bring this disease more into the spotlight by organizing a walking tour for the research project in Leuven and that is how the idea for the rest started!
NEVER LOSE HOPE!
Special Offers
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