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Cure Scleroderma

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Anja is the driving force behind Cure Scleroderma :

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To raise awareness of the disease, we take actions such as:

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Walk For Scleroderma.

Who are we?

 

Cure Scleroderma

Online Enrollment (Payment) 

Walk For Scleroderma

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Anja is the driving force behind Cure Scleroderma :

​

To raise awareness of the disease, we take actions such as:

​

Walk For Scleroderma.

Scleroderma is translated Scleroderma, which is an extremely rare incurable autoimmune disease, which affects 3000 people in Belgium.

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By organizing an annual Walking Tour and selling t-shirts, caps and support ribbons, we hope to raise awareness of this disease and increase funding for research.

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UZ Leuven

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All proceeds from the annual walking tour and sales go entirely to the Scleroderma research project, headed by Prof. dr. Dr. Ellen DeLanghe.

 

 

The idea

 

In 2017 I was diagnosed with Systemic Sclerosis.

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Due to red spots in my face, which I wanted to have lasered away at a dermatologist, I was advised to have blood drawn and to go to a Rheumatologist .... so said, done.

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I also had swollen, red, blue and white fingers for quite some time, read years, I blamed my chemotherapy that I had to undergo in 2007 to cure my breast cancer.

But no, I have   Raynaud's Syndrome, a first symptom of Scleroderma and other additional complaints.

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After all kinds of other investigations, the diagnosis was made by Rheumatologist Dr. Jan Lenaerts.

Boom! Chips!

And now?

 Don't give up, I told myself!

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I'm still doing relatively well and I like to walk, so I decided to bring this disease more into the light of day by organizing a walking tour for the research project in Leuven and that's how the idea for the rest started!

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NEVER LOSE HOPE!

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Mary Vos

Chief Editor

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Rare Disease Day

2022

Sanne Verhoef

Art Director

Fenne Jansen

Program Editor

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